Wednesday, 1 August 2012

The district nurse referred me to Meals on Wheels - I'm getting dinner delivered to home twice a week.  On the one side it makes life easier, and makes sure I eat something cooked most days of the week (the first 'plate' was far too big for me, but it means I had dinner for two days, and plenty of it), but on the other side I feel down for it: yet another step in the chain of proofs of the progressive nature of fibromyalgia.  The fact that the district nurse felt I qualify for the service, and on top of that suggested I should consider installing a personal alarm (a pendant, which can connect one with dedicated line of emergency services in case of a problem: a fall very likely in my case, but also a heart attack, mini-stroke when I'm not able to get to the phone to get an ambulance, etc.), made me feel fairly depressed.  Not sorry for myself, but shocked and sad how much of my abilities I have already lost, and sort of curious how much stamina will I have to keep going, for how long?  And this constant, deadly tiredness, yet waking up at odd hours with a brief bursts of energy - sometimes I manage to have a cup of tea, sometimes (not every day, unfortunately) check my e-mails and even answer a couple.  I love when somebody comes in, but even visits tire me out quickly, and as soon as the guest is out, my eyes just shot solid and there is nothing I can do - except sleep three, four, even five hours.  Fun...

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